Low Dose Naltrexone – LDN for Fibromyalgia. A Patient’s Experiences


Gerber Daisy

I recently sent out a blog post Low Dose Naltrexone ( LDN ) for Fibromyalgia prompted by a tip from a fellow Warrior, Vicki.  She commented on that post and I wanted to share it with everyone in case you missed her comments.  Beneath her post, I am going to relist the websites from my previous post and add the Yahoo Group as well.  One of the reasons I started this blog was to reach others and exchange tips about what is actually working.  I am so excited to see that happening.  Thanks again Vicki!

Margo and others,
That’s great that you chose to share the information. As I posted earlier, I’ve been using LDN for about 15 months and have had quite a bit of improvement in my symptoms. However, I agree with you that everyone needs to read up on it before trying it. You’ve listed great websites, the first site being the most informative.

Also, there is a Yahoo Group – LDNforFibro – that is phenomenal. Lots of information and support from others using the medication. The lowdosenaltrexone.org site has a list of doctors by state that will prescribe the medication as well as information and research that you can take to your doctor to familiarize him or her with the protocol.

I go through Irmat Compounding Pharmacy in NYC, 212-685-0500, to fill the prescription ($38 per month). Irmat is considered the best compounder for this drug due to biweekly testing of the quality of the drug. But most compounding pharmacies make it.

The drug has no side effects aside from an adjustment period the first week or two which is explained fully on the website. However, for some, It can cause insomnia. I have problems with the insomnia because the drug seems to really give me energy after I take it and it will keep me awake at night so I just take it first thing in the morning and it works just as well. There is some debate over the proper time to take it due to endorphin production, but several of us on the Yahoo group take it in the morning and still have benefits.

However, if you are taking any type of opium based pain medication, you have to stop taking that because it is an opium blocker. The exception is Ultram. Again, all this is explained on the site.

It hasn’t cured my fibromyalgia but it has reduced the pain considerably and increased my energy levels – which makes it worth my time to use it.

Vicki

http://health.dir.groups.yahoo.com/group/LDNforFibro/

http://www.lowdosenaltrexone.org/

http://snapl.stanford.edu/research/ldn.html

http://chronicfatigue.about.com/b/2010/05/20/information-on-ldn-for-fibromyalgia-presented-at-conference.htm

http://chronicfatigue.about.com/od/treatingfmscfs/p/LDN.htm

http://www.webspawner.com/users/ldnforfms/index.html

http://www.ldners.org/

Yours in Health,

M

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