Low Dose Naltrexone ( LDN ) for Fibromyalgia


Buttercup as the Tooth Fairy for Halloween

I recently received a tip from a fellow Warrior named Vicki.  I hope she doesn’t mind that I’m posting this.  I think knowledge is our greatest weapon and I am extremely grateful to her for telling me about this.

Vicki told me about people with Fibromyalgia using Naltrexone in a low dose to help symptoms.  Since her tip, I did some research.  Naltrexone is a drug that is FDA approved to help people who have stopped using alcohol and drugs.  However there has been testing using Naltrexone for patients with autoimmune diseases (like MS and lupus), cancer, HIV, CFS and Fibromyalgia.

It works by blocking certain receptors to the brain and from what I can tell it basically makes your immune system work properly.  I am going to follow this post with links to different pages that discuss this drug and it’s treatment of Fibromyalgia.

I know what you’re thinking, oh wow!  I’m going to talk to my doctor about this asap. Slow down!  This is in preliminary phases and it’s likely your doctor knows nothing about it.  Remember, your doctor believes he/she knows more than you and they don’t generally like when patients tell them something they don’t know.  So tread carefully. Read over the links I have below and do some research on your own.  Make your own informed decision and then speak to your doctor.

I am going to keep doing research and will add anything else useful that I discover.

Knowledge is power my friends.

http://www.lowdosenaltrexone.org/

http://snapl.stanford.edu/research/ldn.html

http://chronicfatigue.about.com/b/2010/05/20/information-on-ldn-for-fibromyalgia-presented-at-conference.htm

http://chronicfatigue.about.com/od/treatingfmscfs/p/LDN.htm

http://www.webspawner.com/users/ldnforfms/index.html

http://www.ldners.org/

Thanks Vicki,

M

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2 Responses to Low Dose Naltrexone ( LDN ) for Fibromyalgia

  1. Vicki says:

    Margo and others,
    That’s great that you chose to share the information. As I posted earlier, I’ve been using LDN for about 15 months and have had quite a bit of improvement in my symptoms. However, I agree with you that everyone needs to read up on it before trying it. You’ve listed great websites, the first site being the most informative. Also, there is a Yahoo Group – LDNforFibro – that is phenomenal. Lots of information and support from others using the medication. The lowdosenaltrexone.org site has a list of doctors by state that will prescribe the medication as well as information and research that you can take to your doctor to familiarize him or her with the protocol. I go through Irmat Compounding Pharmacy in NYC, 212-685-0500, to fill the prescription ($38 per month). Irmat is considered the best compounder for this drug due to biweekly testing of the quality of the drug. But most compounding pharmacies make it. The drug has no side effects aside from an adjustment period the first week or two which is explained fully on the website. However, for some, It can cause insomnia. I have problems with the insomnia because the drug seems to really give me energy after I take it and it will keep me awake at night so I just take it first thing in the morning and it works just as well. There is some debate over the proper time to take it due to endorphin production, but several of us on the Yahoo group take it in the morning and still have benefits. However, if you are taking any type of opium based pain medication, you have to stop taking that because it is an opium blocker. The exception is Ultram. Again, all this is explained on the site. It hasn’t cured my fibromyalgia but it has reduced the pain considerably and increased my energy levels – which makes it worth my time to use it.

    Vicki

    • Margo says:

      Thanks Vicki! I’m going to update this posting to include the information you’ve written. I think fibromyalgia is all about finding hope and I think the potential of LDN does just that!
      Thanks again,
      M

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